Am I good enough?
Every now and then I have a niggle of self-doubt, asking myself “am I good enough?” Growing up in mainstream school I was the only disabled pupil with a power...
To verbalise or not to verbalise - choosing to use AAC
This has been on my mind for several months now. Back in February, I found something wrong with my mouth, I had a lump in my cheek and it was...
Life is an adventure
I’ve been having adventures every day of my life for as long as I can remember. Sometimes they have been exciting and exhilarating or occasionally they’ve been scary. Some we...
A new look
I'm getting excited, on Tuesday this week after months of work I will be relaunching my website. It has a whole new look but still with a focus on lived...
Learning to say No!
Everyone likes to be liked, and for some people it seems that saying no is harder than for others. In the past I’ve been made to feel bad, that saying...
It’s all in a name: Employing personal assistants
When I started out employing personal assistants at the age of 12, as a family, we considered all of the different titles the role may be called from carer to...
Communication breakdown and repair strategies
For all communication I prefer my communication partner, if they can, to be on my level, it can be hard to be looking up to lip read (I have a...
Living independently
I employ a team of personal assistants who support me 24 hours a day and 7 days a week. Each team member works with me on a 1-1 basis, and...
Reverse engineering life
For me ‘the time it takes is the time it takes’. What I mean by this is that I cannot dress any more quickly and I cannot eat any more...